Wednesday, September 14, 2011


“When you hear hoofbeats, think horses, not zebras.”
I am a zebra, I will put it right out there into the world. I am not like everyone else.
I live with a connective tissue disorder called Ehlers Danlos Syndrome (though often I simply call it EDS). 
Medical students are taught to look for the most common disease, syndrome or illness (or “horse” as it applies to my quote posted at the top of this entry) to the question of whats wrong with a person’s body. 
EDS, is a “zebra” condition that causes pain, chronic fatigue, troubles healing, and easily wounded skin. 
HOWEVER, I still live a happy life. 
Recently I’ve been told “I’m sorry you have to live like that, it must just ruin your life.” And yes, there are days I get so fed up I just want to scream, but there’s no use in it. I will have this disease the rest of my life.
So to combat this negative attitude around me, I’m beginning this tumbler account as well as a blog (tumblr is found at I will show the world the amazing life I still live with this disorder. 

No comments:

Post a Comment